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Education/Academic qualification
Health, Doctorate, Palliative care for people with intellectual disabilities, Maastricht University
Award Date: 2 Nov 2007
Health, Bachelor, Nursing Studies: Palliative Care (First Class Honours), King's College London
Award Date: 1 Jun 1999
Diploma of Higher Education in Nursing Studies (Distinction), King's College London
Award Date: 10 Sept 1996
Registered Nurse, HBOV School of Nursing, Amsterdam
Award Date: 9 Sept 1991
Keywords
- RT Nursing
- Palliative Care
- Intellectual Disability
- HT Communities. Classes. Races
- Intellectual Disability
- HV Social pathology. Social and public welfare
- Death & Dying
- Intellectual Disability
- Q Science (General)
- Inclusive research
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Collaborations and top research areas from the last five years
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Getting it out there: reflections on the process and impact of public engagement activities in a study on end‐of‐life care planning with people with intellectual disabilities
Bruun, A., Cresswell, A., Jeffrey, D., Jordan, L., Keagan‐Bull, R., Giles, J., Swindells, S., Wilding, M., Payne, N., Allen, G., Hughes, R., Tilley, E., Gibson, S. L., Anderson‐Kittow, R. & Tuffrey‐Wijne, I., Apr 2026, In: Health Expectations. 29, 2, 9 p., e70653.Research output: Contribution to journal › Article › peer-review
Open Access -
Exploring England’s palliative and end-of-life care systems for people with learning disabilities: the perspectives of senior health and social care professionals and commissioners
Redmore, N., Wallace, L. & Tuffrey-Wijne, I., 28 Dec 2025, (E-pub ahead of print) In: British Journal of Learning Disabilities.Research output: Contribution to journal › Article › peer-review
Open Access10 Downloads (Pure) -
Don't assume, ask! A focus group study on end-of-life care planning with people with intellectual disabilities from minoritised ethnic groups
Bruun, A., Jordan, L., Giles, J., Hughes, R., Anderson-Kittow, R. & Tuffrey-Wijne, I., Dec 2025, In: BMC Palliative Care. 24, 13.Research output: Contribution to journal › Article › peer-review
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Evaluating a toolkit for end-of-life care planning with people with intellectual disabilities: an exploration of implementation outcomes within intellectual disability social care services
Bruun, A., Cresswell, A., Jeffrey, D., Jordan, L., Keagan-Bull, R., Giles, J., Gardiner, F., Wilding, M., Payne, N., Swindells, S., Gibson, S. L., Anderson-Kittow, R. & Tuffrey-Wijne, I., 25 Aug 2025, (E-pub ahead of print) In: Journal of Intellectual Disabilities. 23 p.Research output: Contribution to journal › Article › peer-review
Open Access29 Downloads (Pure) -
Developing service models for adult palliative and end of life care for people with a learning disability (The DAPPLE Project): protocol for a mixed-method study
Tuffrey-Wijne, I., Tilley, E., Tyler, F., Islam, Z., Borgstrom, E., Jordan, J., Glover, G., Wallace, L., Roberts, C., Giles, J., Keagan-Bull, R., Cresswell, A. & Anderson-Kittow, R., 25 Jul 2025, In: BMJ Open. 15, 7, 8 p., e106752.Research output: Contribution to journal › Article › peer-review
Open Access
Datasets
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Euthanasia and physician-assisted suicide in people with intellectual disabilities and/or autism spectrum disorders: an investigation of 39 Dutch case reports (2012-2021)
Tuffrey-Wijne, I. (Author), Curfs, L. (Author), Hollins, S. (Author) & Finlay, I. (Author), Kingston University, 2023
Dataset
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Don’t assume, ask! A focus group study on end-of-life care planning with people with intellectual disabilities from minoritised ethnic groups
Bruun, A. (Creator), Jordan, L. (Creator), Giles, J. (Creator), Hughes, R. (Creator), Anderson-Kittow, R. (Creator) & Tuffrey-Wijne, I. (Creator), figshare, 2025
DOI: 10.6084/m9.figshare.c.7626516
Dataset
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What are we planning, exactly? The perspectives of people with intellectual disabilities, their carers and professionals on end-of-life care planning: A focus group study
Bruun, A. (Creator), Cresswell, A. (Creator), Jordan, L. (Creator), Keagan-Bull, R. (Creator), Giles, J. (Creator), Gibson, S. L. (Creator), Anderson-Kittow, R. (Creator) & Tuffrey-Wijne, I. (Creator), Sage Journals, 2024
Dataset