Defining consensus norms for palliative care of people with intellectual disabilities in Europe, using Delphi methods: A White Paper from the European Association of Palliative Care (EAPC)

Irene Tuffrey-Wijne; Dorry McLaughlin; Leopold Curfs; Anne Dusart; Catherine Hoenger; Linda McEnhill; Sue Read; Karen Ryan; Daniel Satgé; Benjamin Straßer; Britt Evy Westergård; David Oliver

doi:10.1177/0269216315600993

Defining consensus norms for palliative care of people with intellectual disabilities in Europe, using Delphi methods: A White Paper from the European Association of Palliative Care (EAPC)

Irene Tuffrey-Wijne
, Dorry McLaughlin
, Leopold Curfs
, Anne Dusart
, Catherine Hoenger
, Linda McEnhill
, Sue Read
, Karen Ryan
, Daniel Satgé
, Benjamin Straßer
, Britt Evy Westergård
, David Oliver

Kingston University
Queen's University Belfast
Maastricht University
Centre Régional d'Études
Service de la Santé Publique
Prince and Princess of Wales Hospice
Keele University
University College Dublin
Oncodefi
Caritas of the Diocese of Munich and Freising
Norwegian National Advisory Unit on Ageing and Health
University of Kent

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Abstract

This White Paper presents the first guidance for clinical practice, policy and research related to palliative care for people with intellectual disabilities based on evidence and European consensus, setting a benchmark for changes in policy and practice.

Original language	English
Pages (from-to)	446-455
Journal	Palliative Medicine
Volume	30
Issue number	5
Early online date	7 Sept 2015
DOIs	https://doi.org/10.1177/0269216315600993
Publication status	Published - 31 May 2016

Keywords

Nursing and midwifery

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10.1177/0269216315600993

Tuffrey-Wijne-I-32223-VoRFinal published version, 370 KBLicence: CC BY-NC

http://dx.doi.org/10.1177/0269216315600993

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Tuffrey-Wijne, I., McLaughlin, D., Curfs, L., Dusart, A., Hoenger, C., McEnhill, L., Read, S., Ryan, K., Satgé, D., Straßer, B., Westergård, B. E., & Oliver, D. (2016). Defining consensus norms for palliative care of people with intellectual disabilities in Europe, using Delphi methods: A White Paper from the European Association of Palliative Care (EAPC). Palliative Medicine, 30(5), 446-455. https://doi.org/10.1177/0269216315600993

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keywords = "Nursing and midwifery",

author = "Irene Tuffrey-Wijne and Dorry McLaughlin and Leopold Curfs and Anne Dusart and Catherine Hoenger and Linda McEnhill and Sue Read and Karen Ryan and Daniel Satg{\'e} and Benjamin Stra{\ss}er and Westerg{\aa}rd, \{Britt Evy\} and David Oliver",

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doi = "10.1177/0269216315600993",

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Tuffrey-Wijne, I, McLaughlin, D, Curfs, L, Dusart, A, Hoenger, C, McEnhill, L, Read, S, Ryan, K, Satgé, D, Straßer, B, Westergård, BE & Oliver, D 2016, 'Defining consensus norms for palliative care of people with intellectual disabilities in Europe, using Delphi methods: A White Paper from the European Association of Palliative Care (EAPC)', Palliative Medicine, vol. 30, no. 5, pp. 446-455. https://doi.org/10.1177/0269216315600993

Defining consensus norms for palliative care of people with intellectual disabilities in Europe, using Delphi methods: A White Paper from the European Association of Palliative Care (EAPC). / Tuffrey-Wijne, Irene; McLaughlin, Dorry; Curfs, Leopold et al.
In: Palliative Medicine, Vol. 30, No. 5, 31.05.2016, p. 446-455.

Research output: Contribution to journal › Article › peer-review

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AU - Tuffrey-Wijne, Irene

AU - McLaughlin, Dorry

AU - Curfs, Leopold

AU - Dusart, Anne

AU - Hoenger, Catherine

AU - McEnhill, Linda

AU - Read, Sue

AU - Ryan, Karen

AU - Satgé, Daniel

AU - Straßer, Benjamin

AU - Westergård, Britt Evy

AU - Oliver, David

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AB - This White Paper presents the first guidance for clinical practice, policy and research related to palliative care for people with intellectual disabilities based on evidence and European consensus, setting a benchmark for changes in policy and practice.

KW - Nursing and midwifery

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DO - 10.1177/0269216315600993

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Defining consensus norms for palliative care of people with intellectual disabilities in Europe, using Delphi methods: A White Paper from the European Association of Palliative Care (EAPC)

Abstract

Keywords

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