Don't assume, ask! A focus group study on end-of-life care planning with people with intellectual disabilities from minoritised ethnic groups

Andrea Bruun; Leon Jordan; Jo Giles; Rhidian Hughes; Rebecca Anderson-Kittow; Irene Tuffrey-Wijne

doi:10.1186/s12904-025-01646-0

Don't assume, ask! A focus group study on end-of-life care planning with people with intellectual disabilities from minoritised ethnic groups

Andrea Bruun
, Leon Jordan
, Jo Giles
, Rhidian Hughes
, Rebecca Anderson-Kittow
, Irene Tuffrey-Wijne

Research output: Contribution to journal › Article › peer-review

Original language	English
Article number	13
Journal	BMC Palliative Care
Volume	24
DOIs	https://doi.org/10.1186/s12904-025-01646-0
Publication status	Published - 14 Jan 2025

Bibliographical note

Note: The study was part of a research project funded by The National Institute for Health Research (NIHR) Research for Social Care (RfSC), Research for Patient Benefit (RfPB) Programme (NIHR202963). The study reported in this paper was awarded and supported by additional NIHR RfSC Equality, Diversity and Inclusion (EDI) funds.

Keywords

Health services research

Access to Document

10.1186/s12904-025-01646-0

https://doi.org/10.1186/s12904-025-01646-0

Cite this

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title = "Don't assume, ask! A focus group study on end-of-life care planning with people with intellectual disabilities from minoritised ethnic groups",

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author = "Andrea Bruun and Leon Jordan and Jo Giles and Rhidian Hughes and Rebecca Anderson-Kittow and Irene Tuffrey-Wijne",

note = "Note: The study was part of a research project funded by The National Institute for Health Research (NIHR) Research for Social Care (RfSC), Research for Patient Benefit (RfPB) Programme (NIHR202963). The study reported in this paper was awarded and supported by additional NIHR RfSC Equality, Diversity and Inclusion (EDI) funds.",

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AU - Giles, Jo

AU - Hughes, Rhidian

AU - Anderson-Kittow, Rebecca

AU - Tuffrey-Wijne, Irene

N1 - Note: The study was part of a research project funded by The National Institute for Health Research (NIHR) Research for Social Care (RfSC), Research for Patient Benefit (RfPB) Programme (NIHR202963). The study reported in this paper was awarded and supported by additional NIHR RfSC Equality, Diversity and Inclusion (EDI) funds.

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