"I'm sure we made it a better studyÔÇª": Experiences of adults with intellectual disabilities and parent carers of patient and public involvement in a health research study

Carole Beighton; Christina Victor; Iain M Carey; Fay Hosking; Steve DeWilde; Derek G Cook; Paula Manners; Tess Harris

doi:10.1177/1744629517723485

"I'm sure we made it a better studyÔÇª": Experiences of adults with intellectual disabilities and parent carers of patient and public involvement in a health research study

Carole Beighton
, Christina Victor
, Iain M Carey
, Fay Hosking
, Steve DeWilde
, Derek G Cook
, Paula Manners
, Tess Harris

Research output: Contribution to journal › Article › peer-review

1 Downloads (Pure)

Original language	English
Pages (from-to)	78-96
Journal	Journal of Intellectual Disabilities
Volume	23
Issue number	1
Early online date	16 Aug 2017
DOIs	https://doi.org/10.1177/1744629517723485
Publication status	Published - 1 Mar 2019
Externally published	Yes

Bibliographical note

Note: This work was supported by the Health Services and Delivery Research Programme of the
National Institute for Health Research (study number 12/64/154).

Keywords

Allied health professions and studies

Access to Document

10.1177/1744629517723485

Beighton-C-38804-VoRFinal published version, 222 KBLicence: CC BY

https://doi.org/10.1177/1744629517723485

Cite this

Beighton, C., Victor, C., Carey, I. M., Hosking, F., DeWilde, S., Cook, D. G., Manners, P., & Harris, T. (2019). "I'm sure we made it a better studyÔÇª": Experiences of adults with intellectual disabilities and parent carers of patient and public involvement in a health research study. Journal of Intellectual Disabilities, 23(1), 78-96. https://doi.org/10.1177/1744629517723485

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author = "Carole Beighton and Christina Victor and Carey, \{Iain M\} and Fay Hosking and Steve DeWilde and Cook, \{Derek G\} and Paula Manners and Tess Harris",

note = "Note: This work was supported by the Health Services and Delivery Research Programme of the National Institute for Health Research (study number 12/64/154).",

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Beighton, C, Victor, C, Carey, IM, Hosking, F, DeWilde, S, Cook, DG, Manners, P & Harris, T 2019, '"I'm sure we made it a better studyÔÇª": Experiences of adults with intellectual disabilities and parent carers of patient and public involvement in a health research study', Journal of Intellectual Disabilities, vol. 23, no. 1, pp. 78-96. https://doi.org/10.1177/1744629517723485

"I'm sure we made it a better studyÔÇª": Experiences of adults with intellectual disabilities and parent carers of patient and public involvement in a health research study. / Beighton, Carole; Victor, Christina; Carey, Iain M et al.
In: Journal of Intellectual Disabilities, Vol. 23, No. 1, 01.03.2019, p. 78-96.

Research output: Contribution to journal › Article › peer-review

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AU - DeWilde, Steve

AU - Cook, Derek G

AU - Manners, Paula

AU - Harris, Tess

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